Patient and Family Engagement
What is Patient and Family Engagement?
Patient and Family Engagement refers to opportunities where patients, families and members of the public are encouraged to be active partners at all levels of the health system. This includes in their own clinical and self-management journey, as well as in providing input into decisions that shape health programs, policies, evaluation and research.
What is a Patient partner?
Current or past patient or caregiver of a patient who joins or engages with a project team or committee as an equal team member. Patient Partners are experts with unique experience and knowledge gained through living with a condition or illness, receiving treatment, or supporting a loved one who is a patient. This experience and knowledge are vital to the improvement of our health care system.
The recommendation is that
any decision in an organization that would impact a patient, must have a patient at the table.
Why is being a Patient Partner important?
Sharing your experience(s) as a patient, family member, or caregiver can help us identify where things are working well and where we have opportunities to make improvements. Both types of experience with the system are very helpful to our learning. We can build on the positives and look for how to replicate in other areas, working with you to identify how to improve our services. In this way, you can have a role in shaping and improving care for everyone.
You are the experts on your own experience. Through engagement, you can provide your unique insight into how you experience health-care services, how these services affect your health and how they support you to take control of your health. With your involvement and insight, we can make better decisions and plans.
What do Patient Partners do?
Patient and Families work together with staff and collaborate within the health-care system to share their insights and experiences in order to improve the quality and safety of health care. Examples include:
- Participating in board meetings
- Assisting with the creation and review of policies and documents
- Providing input into discussions around renovations/new construction
- Participating in discussions around facility menu planning
- Sharing opinions and suggestions around recruitment and retention of staff
- Input into budgeting